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EpiFollow

Following the development of children born to mothers with epilepsy

This research helps us learn more about how children grow and develop after being exposed to anti-seizure medicines during pregnancy.

EpiFollow Video

EpiFollow Video

Portrait of Mother and Son

About EpiFollow

EpiFollow is part of the EpiSafe research programme. It follows up with children, now aged 8 to 14, whose mothers took part in the NaME or EMPiRE studies and used anti-seizure medication during pregnancy. 

What does it involve?

One-Time Visit

Flexible location
at home, school,
or clinic

Child Activities

Fun tasks that look at memory, thinking, attention & communication

Parent Questionnaires

Questions about your child’s behaviour, emotions & social skills

Parent Insights (Optional)

Short IQ task to help understand the full picture

Share Your Story (Optional)

Some families may be invited to speak about parenting with epilepsy

You’ll receive a brief written summary of your child’s assessment to keep and a £25 voucher as a Thank You

By taking part, you are helping

Many epilepsy medicines are essential to help women stay well during pregnancy, but we still don’t fully understand if or how they might affect children as they grow. EpiFollow is the largest study of its kind in the UK and will help us build better guidance for families in future.

Child Playing

Understand how children develop over time

Spilled prescription pills

Learn how medications during pregnancy may influence development

Stack of Notebooks

Improve guidance and care for future families

What if I have questions?  

 Reach out to us at epi_follow@manchester.ac.uk or 0161 306 1700

Caring Child

Thank You

By sharing your time and experiences, you are helping us learn and improve care for other families in the future.

NIHR Logo
University of Birmingham Logo
Birmingham City University smiling pregnant woman in a blue cardigan and white top lovingly gazes down at her young daughter, who is hugging her belly, in a warm, homey setting, conveying a moment of family affection and maternal bonding.
Epilepsy Institute logo
Manchester University Logo
image.pngBelfast Health & Social Care Trust Logo
King's Health Partnets Logo
University of Liverpool
Aberdeen University
Murdoch Childrens research Institute logo
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