A personal reflection from Kathryn Burrell The moment I held my babies for the first time was surreal. Yet with my son, I remember not feeling right. I’m a metre from the ground on this hospital bed, I can’t hold my baby when I feel like this. Thankfully, I didn’t have a seizure, but those first few moments with my son were stolen from me because I didn’t trust my body, because of my epilepsy. The fears of bringing baby home My anxious mind went to a lot of worst-case scenarios in those first...

Throughout 2025, the EpiSafe PPIE Advisory Group has continued to play an important role in shaping the programme. Members have contributed lived experience and practical insight across a wide range of activities, including reviewing patient-facing materials, informing ethics and confidentiality processes, contributing to health economics discussions, supporting training video development, and feeding into the new ICH draft guideline E21 on the inclusion of pregnant and breastfeeding...

Fatima Junaid, one of the EpiSafe team members, presented a poster showcasing findings from our systematic review on seizure risk factors...